Here you'll find further information signposting information for patients and families (all ages). Please note that whilst the committee support the listed resources, clinicians must use their own sensitive judgement regarding which are appropriate to suggest for thier patients. The resources listed below are also extensive, but are not exhaustive.
The national eating disorders charity BEAT offers a confidential and inclusive space for anyone who has, or thinks they might have, ARFID. The Hummingbird Online Support Group currently runs on Sundays 6.45pm-7.45pm. Find out more on the BEAT website where you can also find Peer support and online development for carers (POD sessions) and Further information on Support for Carers – Beat.
ARFID Awareness UK also offers online virtual community support options for individuals or carers.
The ARFID Awareness UK website includes information and resources. The site shop also includes options to purchase cards which help inform schools and restaurants about the disorder.
For carers of children with ARFID, arfidkids.com is a wonderful, comprehensive resource.
A range of books is available including:
- ARFID Avoidant Restrictive Food Intake Disorder: A guide for parents & carers by Rachel Bryant-Waugh
- Helping your child with extreme picky eating by Katja Rowell & Jenny McGlothlin
- The picky eater’s recovery book by Jennifer Thomas
- Can’t eat, won’t eat by Brenda Legge
- The Autistic Teens Avoidant Eating Workbook by Elizabeth Shea
This Instagram account helps to understand support through food chaining: @feedingpickyeaters
The South Yorkshire Eating Disorder Association website (SYEDA) has an ARFID self-help course for individuals (adults) struggling with the symptoms of ARFID. You can move through the 4-step programme at your own pace, and it includes:
- Learning about ARFID and making some early changes
- Continuing early changes and setting big goals
- Facing your fears
- Preventing relapse
Written self-help material for young people or their parents/carers is available in the modules from the Be Body Positive website
Longer webinar videos for parents/carers are available to watch from the Aneurin Bevan University Health Board website(nhs.wales). They present slides with talking but without subtitles.
If you think there's a great accessible resource that we've missed - please do let us know!