Resources for People with Kidney Disease

Guidance for Food Banks and Budget Recipes

A short advice sheet for Food Banks catering to clients with Kidney Disease has been completed and is available here. Kidney Kitchen in conjunction with the RNG has produced a Budget Conscious Booklet with recipes, which is available free to patients and dietitians. Order your copies here. The Food Bank guidance is also on the KCUK website and in their booklet, and it has been circulated to The Trussell Trust and an association for Independent Food Banks.

We are aiming to protect our patient's dignity, if they wish, by making the Food Bank advice as widely available as possible. Please let us know if you are aware of another organization we should inform. [email protected]

Multicultural Information / Resource Library Project

Low potassium advice sheets for Eastern European, Chinese and Far Eastern, South Asian and African Caribbean cultures are completed and are available in English here - as is the dietitians’ handbook here.

Obtaining accurate translations has been more difficult due to funding. Polish and Cantonese versions are available now and more translation is ongoing. Meanwhile, because translation costs have been prohibitive, we plan to start a library/pool of already translated patient information sheets from around the UK. These will be uploaded to the website as they are, and will not go through the BDA/RNG approval processes.

If you have translated patient resources that you are happy to contribute, please get in touch. [email protected]  

We will be pleased to have a range of information sheets for one language and subject. Please send the English language version from which they were translated from if possible. 

We are also hoping for support in reviewing (review sheet) these resources to ensure they are useful and useable. if you speak a non-English language and would like to help us, please get in touch.

Thushara Dassanayake is leading this project: [email protected]

Updating current resources for people with kidney disease

Jane Richardson is leading a working group producing a bank of updated resources for people with kidney disease. We have produced mainly Fact Sheet level resources so far, suitable for access without a renal dietitian. We are now moving on to resources for renal dietitians to use with people with kidney disease. 

This important work should save us all time, by saving us separately writing our own. You are welcome to join us to help produce the resources sooner. Let us know if you are intending to produce a resource locally and if you are happy to share. Or work with us to produce a nationally used one. 

Healthy Eating for your Kidneys:

We have just completed an information sheet for those with CKD 1-5 who do not need low potassium, low phosphate or nutritional support advice, in association with the NKF. The NKF version will be on our webpages, whilst we are formatting our own version.

The Plant Based healthy eating versions -one for people with CKD 1-5 not on dialysis, one for those on dialysis, and one for those with a transplant- have been completed in conjuction with Plant Based Health Professionals and are available here.

Phosphate:

A phosphate information sheet has been produced, and is available here. This and the Potassium Fact Sheet below, are being considered as BDA fact sheets.

Potassium:

 A Potassium Fact Sheet is now available here

A Vegetarian/Vegan low potassium information sheet, which is also suitable for Asian type diets, is going through our approval processes.

We are updating the Low Potassium advice for KCUK. When approved by KCUK a link will then be available from our webpages.

Easy Read Resources

We have started to produce a pictoral style easy-read resource on How to Eat Less Salt. It is planned that this will be followed by other easy read resources for people with kidney disease. 

Meanwhile, there are some videos produced and kindly shared by North Bristol Trust available here. And some by NHS Greater Glasgow and Clyde here and here

Additionally, we are considering information on Diabetes and CKD, Potassium Additives in food, and a separate Phosphate Additives information sheet. Please contact us with any requests for additional patient resources that you would like to see, and with any requests for a priority order in those planned using the email: [email protected]